Advance Directives and Substitute Decision-Making

There is a rough consensus in medical ethics on the requirement of respect for patient autonomy: physicians must ultimately defer to patients' own decisions about the management of their medical care, so long as the patients are deemed to have sufficient mental capacity to make the decisions in question. For patients who lack the relevant decision-making capacity at the time the decision is to be made, a need arises for surrogate decision-making: someone else must be entrusted to decide on their behalf. Patients who formerly possessed the relevant decision-making capacity might have anticipated the loss of capacity and left instructions for how future medical decisions ought to be made. Such instructions are called an advance directive. One type of advance directive simply designates who the surrogate decision-maker should be. A more substantive advance directive, often called a living will, specifies particular principles or considerations meant to guide the surrogate's decisions in various circumstances, for example, “Do not prolong my life if I enter persistent vegetative state,” or “I am a fighter: do not discontinue life-sustaining treatment no matter what happens to me.”

This general framework opens up a number of ethical issues. I shall set aside here a foundational issue that is a subject of its own encyclopedia article: What are the criteria for decision-making capacity? These must be specified before we can establish, on any given occasion, whether there would be any need at all for decision-making by a third party (with the aid of an advance directive or not). Assuming we have settled, using the appropriate criteria, that surrogate decision-making is indeed called for, the following main issues arise:

Q1. Who should be the surrogate decision-maker?

Q2. On what basis should the surrogate make the decision? What considerations should she take into account? And, more specifically,

Q2a. Should the advance directive be honored?

This article focuses on philosophical contributions to the last two sets of questions.